We are AVM survivors, here for your support.
Past Events (39)
May 26Saturday
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AVM BBQ, Friends and food!
May 26, 2012 from 12pm to 9pm – Houston, TX Calling all AVM'er friends and families that can make it our to our 3rd annual event! It will be bigger and better in Texas this year! We have a bigger House! A bigger yard (more room for kids)! More… Organized by Daniel & Crystal Sadler | Type: avm, bbq, friends, and, food!
May 6Sunday
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2012 TAAF Walk
May 6, 2012 from 9am to 2pm – Crissy Field TAAF's 7th annual walk is coming up in SF. If you have never been, it's highly recommended for the opportunity to meet AVM survivors from around the world and enjoy the beautiful views of the SF bay… Organized by TAAF | Type: fundraiser
March 24Saturday
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AVM get together in San Antonio
March 24, 2012 from 2pm to 5pm – San Antonio Riverwalk - Hard Rock Cafe I'd like to organize a get-together in San Antonio for any and all that want to come. There is a bigger get-together in Houston for Texas folks right after the walk in CA (in May) and thanks to Danie… Organized by Suzy E | Type: avm, get, -together
March 11Sunday
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Sydney AVM Catch Up
March 11, 2012 from 12pm to 3pm – City Extra Cafe It's time we had another Sydney gathering, supped a tea and scones and shared our experiences and dreams. Oh, and also welcomed an out of towner to our shores! Don't forget to bring your family and f… Organized by Tony L Sydney | Type: oznz, meet, up
March 10Saturday
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AVM Get Together in Riverside, CA
March 10, 2012 from 11:45am to 1:45pm – The Cheesecake Factory - Riverside, CA AVM Get Together in Riverside and the best part is Ben Munoz will be in town too. So excited to have Ben, the founder of this site, at our lunch. Lunch at the always good Cheesecake Factory in Rivers… Organized by Debra | Type: lunch
February 23Thursday
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Dave Kaiser Electric Violin @ The Rockpile for AVM awareness and The Daisy Foundation
February 23, 2012 from 8pm to 10pm – The Rockpile Bar/Night Club at 5555 Dundas St. W., Toronto, ON Come out on February 23rd to The Rockpile at 5555 Dundas St. W., Etobicoke, ON for my debut electric violin performance in support of AVM awareness and The Daisy Foundation. I'll be playing a solo se… Organized by Dave Kaiser and Misfit Promotions | Type: talent, night, at, the, rockpile
January 2Monday
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4th Annual Caleb Can-Do
January 2, 2012 from 1pm to 3pm – Concordia Lutheran Church-Kirkwood, MO "Jump" on board with the 4th Annual Caleb's Can-Do. This year's event takes on a different project as a dear friend of the Hays', Roy Heflin, is drastically in need of our help. Join the Jump, Run, a… Organized by dcemrh through the Concordia Lutheran Church / Hays Family | Type: fundraiser
December 3Saturday
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AVM Group Luncheon
December 3, 2011 from 1pm to 3pm – Cheesecake Factory??? Other Suggestions? Organized by Caryn | Type: luncheon
November 4Friday
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No Strain on the Vein
November 4, 2011 at 7pm to November 5, 2011 at 12am – Markham Delta Hotel 2011 Inaugural Gala Friday November 4, 2011 Markham Delta Hotel 7pm Dinner, Entertainment & Silent Auction Tickets are on sale ($85.00 per person) Proceeds go to benefit the Toronto Western Hospi… Organized by Melissa Gomes | Type: fundraiser
October 21Friday
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Miss Amazing Pageant
October 21, 2011 from 5pm to 9pm – Covina Assembly of God, Covina CA This is a fundraiser open to any young girl who wants to help shed light on a disability or encumbrance. visit www.friendsoftreasure.com for more information Organized by Chelsa Minch | Type: pageant
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Blog Posts
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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